Everyday Miracles

I was inspired by reading a friend's blog today to write a new post. I am inspired by what seems like a miracle. An email this morning informed me that the CDC has finally started a website for a registry of ALS patients. Finally, we will be able to track and see where all of these patients are coming from, what they have in common, and find a connection. Find a cure, end this horrible disease. Can we please just end this horrible disease? I am in contact with lots of other people like me, young-ish adult children whose parents have or had ALS. One by one I see these people go through the same painful goodbyes and still have no answers to the ultimate question- where does this disease come from, why do you get it, and how the hell can you prevent it? Finally, a miracle might be in our future.

This weekend, Team Sue, our family's walk team, will participate in the Arizona ALS Association's Walk to D'Feet ALS. Each dollar that was raised will provide 91 cents to go straight to ALS research. When someone in your family dies from ALS, you are forever linked to an amazing community of family members who have been through the same thing, and who are fighting to end the same disease. Each year brings new exciting research and more and more hope.

Thank goodness for friends and family who are still willing to put up with me asking them for money each year.

Thank goodness for scientists who put up with family members of the deceased breathing down their necks, screaming for a cure.

Thank goodness for loving families.